The World from ALS
(Part of Living Poem)
Obstacles sprawling along the ground
Are double their size to get around.
Feet making progress hoof by hoof
Are rounded and tip when slightly off.
Moments of weakness barely forestall
A worrisome drop, like a waterfall.
Instincts perform slow-motion sprawls
In the manner of Spiderman leveraging walls.
The “I got it!” message from fingertips
Loses credibility after two or three slips.
A cast iron pan grasped with a mitt
Proves too much and demands to sit.
Tools and techniques to equip a kit
For handicapped tasks seem infinite.
Doctors report on the rump, trunk and ear
Of the elephant, whose parts don’t cohere.
All illness models the cell-death equation:
Excitation incites over-excitation.
Despair courts depression. Anxiety panics.
Niche thinking validates hate-group dynamics.
Slow decline means that, with patience,
One can devise accommodations.
Read-outs on a hand strength gauge
Slip like fingers on a muddy ledge.
Slowed frames of time give each instance
Of life its own existence.
Every engagement is a romance
Another chance to cajole a slow dance.
--Rob Neufeld, 2018